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On the Tip of My Tongue: A Story of Aphasia and Resilience
This is the story of “On the Tip of My Tongue,” a film inspired by Jonathan Hirons’ real-life experience with aphasia. It all began in 2019 during a London meeting. Suddenly, Jonathan couldn’t speak, his thoughts trapped. He couldn’t form sentences, write, or even remember his own phone number.
Diagnosed with aphasia, a condition affecting the language center of the brain, his world was turned upside down. This is a story of resilience, of finding new ways to communicate and connect, even when the familiar pathways are blocked.
Join us as we explore Jonathan’s journey through the challenges and triumphs of aphasia, and discover the power of the human spirit to find its voice, even when it seems lost.
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Voices from the community
“I really enjoyed being one of the first guests to be interviewed for the Tip of my Tongue podcast. It was a great opportunity to raise awareness of the challenges of caring and the support provided by Carers UK. You’ve developed a fantastic resource and I learned a lot about Aphasia from my discussion with Jonathan.”
“Taking part in the podcast “Tip of My Tongue” helped me to take the first steps of building my confidence while living with Aphasia and other disabilities. I have now built my confidence and am now presenting motivational talks. “
Appearing on the On the Tip of My Tongue podcast was a wonderful opportunity to spread the word about our plans for the international aphasia awareness campaign with a wider audience. The podcast creates meaningful conversations that educate, inspire, and help ensure more people understand what aphasia is and why awareness matters.
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The Invisible Prison: What Aphasia Actually Feels Like
By Jonathan Hirons When people ask me what aphasia is, I usually give them the medical definition: it’s a communication disorder, often caused by a stroke, that affects your ability to speak, read, and write. But that doesn’t even scratch the surface of what it feels...
The Long Road Home: Can You Truly Recover From Aphasia?
The Long Road Home: Can You Truly Recover From Aphasia? When I first started filming Tip of My Tongue, I was struck by a recurring question from almost everyone I interviewed—the survivors, the partners, the children. It’s the question that hangs in the air during...
Aphasia AI Innovations: Giving Your Voice Back
Recent breakthroughs in AI are helping survivors communicate using their own unique sounds and intentions, even when speech is difficult. 1. Apple’s "Personal Voice" (iOS 17 & 26) This is a game-changer for those whose speech may fluctuate or who are at risk of...