In the latest episode of the On the Tip of My Tongue podcast, we delve into the inspiring journey of Colin Lyall, the founder of the Say Aphasia charity. Colin shares his personal experience of navigating life after a stroke that led to his diagnosis of aphasia, a condition that profoundly affects communication. His story is not just one of struggle but also of resilience, community, and the power of support.

Colin Lyall
Episode Highlights
Introduction to Aphasia
Colin begins by explaining what aphasia is, shedding light on this often misunderstood condition. He emphasizes the impact it has on individuals’ ability to communicate, which can lead to feelings of isolation.
Colin’s Stroke and Initial Challenges
Colin recounts the stressful lifestyle that contributed to his stroke. He candidly discusses the immediate challenges he faced, including the shock of his diagnosis and the initial struggles with communication.
Speech and Language Therapy Journey
Colin shares his experiences with speech and language therapy, highlighting its critical role in his recovery. He discusses the ups and downs of therapy and how it helped him regain his voice.
Founding Say Aphasia Charity
Motivated by his journey, Colin founded the Say Aphasia charity. He explains the mission behind the charity, which aims to provide support and resources for those living with aphasia.
Expanding the Charity and Overcoming Hurdles
Colin talks about the challenges he faced while expanding the charity, including raising awareness and securing funding. His Future Plans and Reflections
Looking ahead, Colin shares his vision for the future of Say Aphasia and the ongoing need for community support. He reflects on the importance of sharing stories to foster understanding and empathy.
Conclusion and Resources
The episode wraps up with Colin providing valuable resources for those affected by aphasia and encouraging listeners to get involved in raising awareness.
About Say Aphasia
The Say Aphasia Charity is dedicated to supporting individuals with aphasia in the UK. It is uniquely run by people with aphasia, ensuring that the services provided are relevant and empathetic to the needs of its members. The charity aims to create a welcoming environment where individuals can connect and share their experiences.
How Say Aphasia Makes a Difference
The charity focuses on several key areas to support its members:
- Offering companionship and support
- Helping individuals adjust to living with aphasia
- Facilitating connections with others experiencing similar challenges
- Fostering friendships that can last a lifetime
- Providing tips and advice from peers
- Building confidence to socialize and communicate
- Encouraging independence
- Reducing feelings of loneliness
- Creating a relaxed and welcoming atmosphere
- Offering therapeutic activities like art and singing classes
Conclusion
Colin Lyall’s journey through aphasia is a testament to the strength of the human spirit and the importance of community support. His work with the Say Aphasia charity not only helps those affected by aphasia but also raises awareness about this condition, fostering a more inclusive society.
If you or someone you know is affected by aphasia, consider reaching out to local support groups or charities like Say Aphasia. Together, we can make a difference in the lives of those navigating the challenges of communication disabilities.
Let’s continue to spread #AphasiaAwareness and support one another on this journey!